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May 19, 2019 @ 5:32 AM

We struggled with the mixed scoring values from the PDQ, FAB, TUG and S2S.  A 40 in one test compares to a 12 in another test.  The best you could do in one test is 156, another best is 40, another is 22 and then, one test's best is 8 seconds.  What does it all mean?!

We developed the BwP Scoring algorithm using a normalized 100-point basis for every test so boxers and coaches could easily see how one test relates to another.  In regular scoring, a Boxer might score a max 40 in Mobility and  a perfect 8 seconds in the TUG.... Now, they would score 100 in each so coaches can see that their PDQ perception of their mobility is in line with their physical TUG score.  Before, a 156 as ......

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May 18, 2019 @ 5:56 AM

Because it’s a progressive degenerative disorder, the condition has defined levels/stages of development based on the number and severity of symptoms. There is no specific test for diagnosing Parkinson’s disease so diagnosis is typically based on the individual’s medical history along with physical and neurological examinations.

Level 1 is the initial phase of the disorder. It is characterized by mild symptoms that generally do not interfere with daily activities. While changes in posture, walking and facial expressions may be noticeable, tremors and other movement issues typically occur on one side of the body.

During Level 2, stiffness, tremors and other movement issues worsen as both side of the body are affected. .........

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May 13, 2019 @ 11:54 AM

As defined by the National Institutes of Health, Patient Registries are “an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical or policy purpose(s).” In brief, a patient registry is a collection of standardized information about a group of patients who share a condition or experience. The use of “patient” in patient registries is often used to distinguish the focus of the data set on health information.  Within the BwP Project, while all participants have Parkinson’s Disease, we substitute the word &......

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May 7, 2019 @ 12:05 PM

BwP Project data is a combination of Patient-Reported Outcome information, PRO, and Coach Administered Physical Tests, MPTs, administered by participating Project coaches.  This data, available for the first time ever in this size sampling group over a continuous period of time, will provide a robust research platform to measure the value of boxing as Parkinson’s exercise therapy over the long term.

There are two main approaches to a research problem - quantitative and qualitative methods.  Qualitative methods are chosen when the goal of the research problem is to examine, understand and describe a phenomenon.  These methods are a common choice in social science research problems and are often used to study ideas, .........

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May 6, 2019 @ 9:44 AM

How does a person with Parkinson's emotional well being and attitude impact their outlook and willingness to fight their disease?  Can Rock Steady Boxing turn a person's outlook on everyday life around?  Is improving quality of life and emotional attitude towards living with Parkinson's a potential benefit of Rock Steady?

The paper PDQ format is troublesome.  I would look at the 3 pages of check marks and I couldn't "see" what it was supposed to be telling me.  So, I filed it away and didn't bring it up to the boxer because I couldn't tell them why they even filled it out.  Then, I quit using it. 

For 2 years I didn't know the questions were organized into 8 categories.&......

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May 1, 2019 @ 6:29 AM

The Project is open to any boxing-themed Parkinson's exercise therapy program adhering to the following requirements:

  1. Your program must be limited exclusively to people diagnosed with Parkinson's Disease.
  2. Coaches must be as proficient working with people with Parkinson's as they are coaching boxing.
  3. Programs must use a formal intake assessment process including the Parkinson's Disease Questionnaire, PDQ-39, the Fullerton Advanced Balance tests, Timed Up and Go, TUG, and Sit-to-Stand, S2S.
  4. Programs must agree to administer regular reassessments for all boxers, typically on 6 month intervals.
  5. Programs must agree to make a sincere effort to maintain a high level of boxer information/data reliability ...
  6. ...

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Boxers with Parkinson's (c) 2019, 2020, 2021.  A Washington 501c3 Association and Research Project.